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Tag Archives: Friedreich
FA Patient Update 2022
A few people were fortunate enough to travel to Melbourne at the end of February to attend the first in-person FA Patient Update in what seems like forever! The one in early 2020 was cancelled at short notice and brought … Continue reading
Posted in Terry (FAer), Uncategorized
Tagged Ataxia, FA, FAer, fara, Friedreich, Omaveloxolone
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FA and balance… it’s complicated
Balance deficit is often one of the first signals that something’s awry and leads to doctor’s visits, referral to a neurologist and eventually diagnosis for someone with FA. We’re told that balance is so important that through evolution, humans have … Continue reading
Posted in Terry (FAer)
Tagged Ataxia, balance, discombobulation, FA, Friedreich, vestibular
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fara Patient Information Forum 2020, note 3 of 3
This is my third and final note documenting what was presented at fara‘s Patient Information Forum in November 2020. It was an information-packed event and I’m delighted I saw it live. Remember, even if you didn’t though, the presentations were … Continue reading
Posted in Terry (FAer), Uncategorized
Tagged Ataxia, fara, Friedreich
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fara Patient Information Forum, Nov 2020, note 2 of 3
This is the second of three notes I’ll write documenting what was presented at fara‘s Patient Information Forum in November 2020. It was an information-packed event and I’m delighted I saw it live. Even if you didn’t though, the presentations … Continue reading
Posted in Terry (FAer), Uncategorized
Tagged FA, fara, Friedreich
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fara Patient Information Forum, Nov 2020, note 1 of 3
In previous years, I’ve picked out just a few highlights I’d learned at these info forums but that was mostly because I couldn’t make detailed notes while paying attention. This latest info forum was recorded so I’ve been able to … Continue reading
Posted in Terry (FAer)
Tagged Ataxia, FAer, Friedreich, MOXIe, Omaveloxolone
Comments Off on fara Patient Information Forum, Nov 2020, note 1 of 3