FAN – Friedreich Ataxia Network
Queensland's FA support network
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Friedreich Ataxia Network (FAN)
FAN Mission
How can FAN help?
Membership
Management committee
Advocacy
Cathy Mclean RIP
Financials
Constitution
Friedreich Ataxia (FA)
What’s known about FA, from the guy who knows it.
Inheritance
A bit of history, current status and where to next.
Managing FA
Brisbane Clinic
Nutrition
Physiotherapy and exercise
Physiotherapy in FA, a video presentation
Physiotherapy Management of Friedreich Ataxia (FA)
Physio exercises
Friedreich Ataxia and Exercise
Breathing/speech
What your GP should know
Living with FA
Government support
Federal Government
FAer – Fed. Gov’t
Carer – Fed. Gov’t
State Government – QLD
Introduction to NDIS for QLD FAers
FAer – QLD Gov’t
Home Assist Secure – Meikle bathroom
Carer – QLD Gov’t
Non-government support
Useful links & information sources
What’s new/interesting
Search for a cure
RTA408 – in clinical trial
IARC 2015
FARA (Australasia)
FARA (USA)
Constitution
To download a copy of FAN’s constitution,
click here
Blogs
Gay (mother of an FAer)
Jamie-Lee (FAer)
Jules (mother of a WA FAer)
Karen (NDIS tips)
Rebecca (FAer)
Terry (FAer)
Uncategorized
Recent Posts
Progression involves change, not loss.
FA Patient Update 2022
FA and balance… it’s complicated
Sometimes it is okay to be a KAREN, part 1
Introduction to NDIS
fara Patient Information Forum 2020, note 3 of 3
How you can help
1. Make a Donation
2. Donate to FARA
3. Travel with Compass Expeditions
4. Buy Mick’s book to learn about Compass and FAN
5. Buy one of Cathy’s photos
