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Friedreich Ataxia Network
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Jamie-Lee Dwyer (FAer)
Karen Townsend (FAer)
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Friedreich Ataxia
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Nutrition
What your GP should know
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FAN
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Friedreich Ataxia Network
Welcome
Blogs
Contributors
Jamie-Lee Dwyer (FAer)
Karen Townsend (FAer)
Rebecca Walsh (FAer)
Terry O'Hanlon (FAer)
Friedreich Ataxia
Managing FA
Live your best life
FA Clinics - Brisbane & Melbourne
Nutrition
What your GP should know
Physiotherapy and exercise
FAN
Living with FA
Overview
Commonwealth government - NDIS
Other Commonwealth government support
QLD state government support
Non-government support
Useful links & information sources
What's new/interesting
Search for a cure
Contact
Welcome
Folder: Blogs
Back
Contributors
Jamie-Lee Dwyer (FAer)
Karen Townsend (FAer)
Rebecca Walsh (FAer)
Terry O'Hanlon (FAer)
Friedreich Ataxia
Folder: Managing FA
Back
Live your best life
FA Clinics - Brisbane & Melbourne
Nutrition
What your GP should know
Physiotherapy and exercise
FAN
Folder: Living with FA
Back
Overview
Commonwealth government - NDIS
Other Commonwealth government support
QLD state government support
Non-government support
Useful links & information sources
What's new/interesting
Search for a cure
Contact
Rare disease isn’t really, but FA certainly is
Terence O'Hanlon 23/2/25 Terence O'Hanlon 23/2/25

Rare disease isn’t really, but FA certainly is

Rare… another way of saying “special“ :-)

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fara Australia Patient & Family Information Forum, part 5 of 5
Terence O'Hanlon 4/2/25 Terence O'Hanlon 4/2/25

fara Australia Patient & Family Information Forum, part 5 of 5

Louise Corben, Nellie Georgiou-Karistianis and Brad Hyde

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Darwin wasn’t the first to say it, and he didn’t mean what you think he meant.
Terence O'Hanlon 12/1/25 Terence O'Hanlon 12/1/25

Darwin wasn’t the first to say it, and he didn’t mean what you think he meant.

How can we get most value from one another to continue to prosper as a species, into the future?

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fara Australia Patient & Family Information Forum, part 4 of 5
Terence O'Hanlon 10/12/24 Terence O'Hanlon 10/12/24

fara Australia Patient & Family Information Forum, part 4 of 5

Amy Hulme from the University of Wollongong

Rucha Sarwade from the SKB Lab at Monash University in Melbourne

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fara Australia Patient & Family Information Forum, part 3 of 5
Terence O'Hanlon 28/11/24 Terence O'Hanlon 28/11/24

fara Australia Patient & Family Information Forum, part 3 of 5

Liz Soragni from FARA North America

Martin Delatycki from MCRI in Melbourne

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fara Australia Patient & Family Information Forum, part 2 of 5
Terence O'Hanlon 12/11/24 Terence O'Hanlon 12/11/24

fara Australia Patient & Family Information Forum, part 2 of 5

John O'Sullivan from the QLD FA Clinic

Monique Bueno Alves & Lucas Tocchini from Biogen

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fara Australia Patient & Family Information Forum 2024, part 1 of 5
Terence O'Hanlon 15/10/24 Terence O'Hanlon 15/10/24

fara Australia Patient & Family Information Forum 2024, part 1 of 5

Ian Harding from QIMR Berghofer

Mirella Dottori from the University of Wollongong in NSW

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Appreciating my own value part III
Terence O'Hanlon 31/5/23 Terence O'Hanlon 31/5/23

Appreciating my own value part III

What role do you play in someone else's life?

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Appreciating my own value part II
Terence O'Hanlon 30/4/23 Terence O'Hanlon 30/4/23

Appreciating my own value part II

Lending Some Muscle

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Appreciating my own value, part I
Terence O'Hanlon 25/4/23 Terence O'Hanlon 25/4/23

Appreciating my own value, part I

Return on NDIS investment

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Choices, choices…
Terence O'Hanlon 7/2/23 Terence O'Hanlon 7/2/23

Choices, choices…

Choose to be optimistic

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Progression involves change, not loss
Terence O'Hanlon 12/6/22 Terence O'Hanlon 12/6/22

Progression involves change, not loss

Less cognitive load, what a relief!

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FA Patient Update 2022
Terence O'Hanlon 28/4/22 Terence O'Hanlon 28/4/22

FA Patient Update 2022

What's new in 22

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FA and balance… it’s complicated
Terence O'Hanlon 31/8/21 Terence O'Hanlon 31/8/21

FA and balance… it’s complicated

How to stay balanced

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fara Patient Information Forum 2020, note 3 of 3
Terence O'Hanlon 10/3/21 Terence O'Hanlon 10/3/21

fara Patient Information Forum 2020, note 3 of 3

Info forum 2021 part 3

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fara Patient Information Forum, Nov 2020, note 2 of 3
Terence O'Hanlon 27/2/21 Terence O'Hanlon 27/2/21

fara Patient Information Forum, Nov 2020, note 2 of 3

Info forum 2021 part 2

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fara Patient Information Forum, Nov 2020, note 1 of 3
Terence O'Hanlon 9/2/21 Terence O'Hanlon 9/2/21

fara Patient Information Forum, Nov 2020, note 1 of 3

Info forum 2021 part 1

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Trial participation has huge value, to participants and potentially to everyone!
Terence O'Hanlon 22/6/19 Terence O'Hanlon 22/6/19

Trial participation has huge value, to participants and potentially to everyone!

Participation in drug trials

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Perspective: the outsized importance of very little things
Terence O'Hanlon 22/5/19 Terence O'Hanlon 22/5/19

Perspective: the outsized importance of very little things

Small but important

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Five things I learned at the FARA Scientific Symposium, Melbourne, 25th October 2018
Terence O'Hanlon 12/12/18 Terence O'Hanlon 12/12/18

Five things I learned at the FARA Scientific Symposium, Melbourne, 25th October 2018

Deep inside cells, everything impacts something else

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