- Trial participation has huge value, to participants and potentially to everyone!
- Perspective: the outsized importance of very little things
- Five things I learned at the FARA Scientific Symposium, Melbourne, 25th October 2018
- A Virtuous Cycle
- Life with Frederick Ataxia
- D’you like big “…but…”s? Well this one’s huge!
Category Archives: Terry (FAer)
I’m sure none of us would wish FA on anyone. A key downside for those of us who do have it though is that because it’s so rare, not enough monitoring’s been done, not enough data’s been collected for anyone … Continue reading
I’m often cheered up by the number of people who go out of their way to offer me help, especially cheered if it’s a young person. Getting out of the car, loading the car, when shopping etc. The real challenge … Continue reading
What’s great about Deirdre, why I have enormous respect for how she approaches things is that she’s single-minded. (If you don’t know who Deirdre is, click here). She looks only at her objective and how it can be achieved when … Continue reading
Deirdre’s an inspiration, never gets angry or flustered. She never asks “why?” nor even “why not?” I suspect that might be the secret to her ever-present good humour. When any of us might become so frustrated we’d say “I can’t … Continue reading
That’s the headline of an excellent article that appeared in Time Magazine back in December 2012 (if you’re a subscriber, you can still read it online here: http://www.time.com/time/subscriber/article/0,33009,2131532,00.html). (I’ve kept a copy and can email it if you’d like). It deals … Continue reading
According to Martin Crowe (in a twist on a quote from Benjamin Franklin), they’re the three certainties in life. We all know that FA’s a progressive condition, but no-one has yet been able to document a definitive rate of progress. We know for … Continue reading
I reckon everything’s a matter of perspective. I have FA, which is truly F*&%ing Awful, but there’s nothing I can do about it now. To be mad about it would be simply a waste of energy, for me and everyone … Continue reading