Category Archives: Uncategorized

FA Patient Update 2022

A few people were fortunate enough to travel to Melbourne at the end of February to attend the first in-person FA Patient Update in what seems like forever! The one in early 2020 was cancelled at short notice and brought … Continue reading

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fara Patient Information Forum 2020, note 3 of 3

This is my third and final note documenting what was presented at fara‘s Patient Information Forum in November 2020. It was an information-packed event and I’m delighted I saw it live. Remember, even if you didn’t though, the presentations were … Continue reading

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fara Patient Information Forum, Nov 2020, note 2 of 3

This is the second of three notes I’ll write documenting what was presented at fara‘s Patient Information Forum in November 2020. It was an information-packed event and I’m delighted I saw it live. Even if you didn’t though, the presentations … Continue reading

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Perspective: the outsized importance of very little things

It is said that anyone who thinks they are too small to make a difference, hasn’t spent the night with a mosquito in the room. Of a human size but still small, (Game of Thrones spoiler alert) who wasn’t impressed … Continue reading

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Life with Frederick Ataxia

I would just like to write a short story about my life with Frederick Ataxia. I feel it may be of some value to other sufferers. I was born on the Southern tip Pennisula of Tasmania, not quite the South … Continue reading

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