Category Archives: Uncategorized

FA Patient Update 2022

Posted on April 28, 2022 by Terence O'Hanlon

A few people were fortunate enough to travel to Melbourne at the end of February to attend the first in-person FA Patient Update in what seems like forever! The one in early 2020 was cancelled at short notice and brought … Continue reading →

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fara Patient Information Forum 2020, note 3 of 3

Posted on March 10, 2021 by Terence O'Hanlon

This is my third and final note documenting what was presented at fara‘s Patient Information Forum in November 2020. It was an information-packed event and I’m delighted I saw it live. Remember, even if you didn’t though, the presentations were … Continue reading →

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fara Patient Information Forum, Nov 2020, note 2 of 3

Posted on February 27, 2021 by Terence O'Hanlon

This is the second of three notes I’ll write documenting what was presented at fara‘s Patient Information Forum in November 2020. It was an information-packed event and I’m delighted I saw it live. Even if you didn’t though, the presentations … Continue reading →

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Perspective: the outsized importance of very little things

Posted on May 22, 2019 by Terence O'Hanlon

It is said that anyone who thinks they are too small to make a difference, hasn’t spent the night with a mosquito in the room. Of a human size but still small, (Game of Thrones spoiler alert) who wasn’t impressed … Continue reading →

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Life with Frederick Ataxia

Posted on August 6, 2018 by Rebecca Walsh

I would just like to write a short story about my life with Frederick Ataxia. I feel it may be of some value to other sufferers. I was born on the Southern tip Pennisula of Tasmania, not quite the South … Continue reading →

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