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fara Patient Information Forum 2020, note 3 of 3
This is my third and final note documenting what was presented at fara‘s Patient Information Forum in November 2020. It was an information-packed event and I’m delighted I saw it live. Remember, even if you didn’t though, the presentations were … Continue reading
Posted in Terry (FAer), Uncategorized
Tagged Ataxia, fara, Friedreich
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fara Patient Information Forum, Nov 2020, note 2 of 3
This is the second of three notes I’ll write documenting what was presented at fara‘s Patient Information Forum in November 2020. It was an information-packed event and I’m delighted I saw it live. Even if you didn’t though, the presentations … Continue reading
Posted in Terry (FAer), Uncategorized
Tagged FA, fara, Friedreich
Comments Off on fara Patient Information Forum, Nov 2020, note 2 of 3
Perspective: the outsized importance of very little things
It is said that anyone who thinks they are too small to make a difference, hasn’t spent the night with a mosquito in the room. Of a human size but still small, (Game of Thrones spoiler alert) who wasn’t impressed … Continue reading
Posted in Uncategorized
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Life with Frederick Ataxia
I would just like to write a short story about my life with Frederick Ataxia. I feel it may be of some value to other sufferers. I was born on the Southern tip Pennisula of Tasmania, not quite the South … Continue reading
Posted in Rebecca (FAer), Uncategorized
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