Category Archives: Terry (FAer)

A view on meteorology from a physicist

Neils Bohr, a Danish physicist, is reputed to have said “It’s difficult to make predictions, especially about the future”. He was one of the smartest men to ever have lived. I guess he had an enormous respect for weathermen! Well … Continue reading

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What I learned at FARA’s Scientific Symposium

I’m not a scientist, nor a medical researcher. I’m just a normal FAer. I was invited to the Symposium as part of a Patients Panel a Q&A session for researchers who might work in a lab and might interact only … Continue reading

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Being a God isn’t necessarily a good thing

There’s a character in The Hitch Hiker’s Guide to the Galaxy by Douglas Adams called Rob McKenna. Rob is surly, grumpy and intolerant because it’s raining. In fact, wherever Rob is, it’s always raining. As Douglas Adams explains: “… for, … Continue reading

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I define me

In the Spielberg film Bridge of Spies, Rudolf Abel is arrested, charged, tried and convicted of being a Russian spy. He’s “the most unpopular man in America”. At their first meeting, his attorney (Frank Donovan/Tom Hanks) commented on his calm … Continue reading

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I won’t be challenging Usain Bolt

I heard an Olympic champion proclaim the other day that her success was proof that anything’s possible if you want it badly enough. That might be true in her case, but in mine it’s just not so. No matter how … Continue reading

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Life in plastic, it’s fantastic!

I reckon the meaning of ataxia (“lacking coordination”) could be applied to our brains. I know I have FA but I suspect my brain doesn’t. Not my functional brain anyway. The phrase “Use it or lose it” comes from the … Continue reading

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Let FAN be your “tap code”

Remember Jim Stockdale? I wrote about him here. He’s the champion of self-taught resilience, the guy who emphasised the importance of balancing a positive expectation of a future outcome with a realistic perspective on the harsh realities of today. Well … Continue reading

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The Stockdale Paradox

The Stockdale Paradox is named for Jim Stockdale. It was described by Jim Collins in the business book “Good to Great” and it has tremendous relevance to how we approach Friedreich Ataxia. Jim Stockdale was the highest ranking American naval officer … Continue reading

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“Swept off my feet” isn’t the right expression

It’s daunting, getting a wheelchair for the first time. For me, it took a long time, first to recognise that it really was inevitable and then to realise that the time had come. If I’m honest with myself, they probably … Continue reading

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Idebenone

I take Idebenone, as do many FAers, but I take it in the knowledge that neither functional nor neurological benefits have been proven via clinical trial (and there have been many trials). However, it is a powerful antioxidant and therefore, … Continue reading

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