Category Archives: Terry (FAer)

A Virtuous Cycle

If you need something done, ask a busy person they say. And they’re right. You see, what keeps busy people busy is that they’re getting things done. Add the thing you need done and it joins their list. They’ll get … Continue reading

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D’you like big “…but…”s? Well this one’s huge!

In the many years since diagnosis, how I describe FA has become pretty standard: with resignation. People would enthuse to me back then about how fast progress was being made in medical research and assure me how convinced they were … Continue reading

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It’s only a phone. It lets me be smart!

According to Deloitte, smartphone penetration in Australia is at almost the highest level in the world, at 88% in 2017. They’re so useful I reckon penetration among FAers should be 100%. Here are just three apps I have on my … Continue reading

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A view on meteorology from a physicist

Neils Bohr, a Danish physicist, is reputed to have said “It’s difficult to make predictions, especially about the future”. He was one of the smartest men to ever have lived. I guess he had an enormous respect for weathermen! Well … Continue reading

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What I learned at FARA’s Scientific Symposium

I’m not a scientist, nor a medical researcher. I’m just a normal FAer. I was invited to the Symposium as part of a Patients Panel, a Q&A session for researchers who might work in a lab and might interact only … Continue reading

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Being a God isn’t necessarily a good thing

There’s a character in The Hitch Hiker’s Guide to the Galaxy by Douglas Adams called Rob McKenna. Rob is surly, grumpy and intolerant because it’s raining. In fact, wherever Rob is, it’s always raining. As Douglas Adams explains: “… for, … Continue reading

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I define me

In the Spielberg film Bridge of Spies, Rudolf Abel is arrested, charged, tried and convicted of being a Russian spy. He’s “the most unpopular man in America”. At their first meeting, his attorney (Frank Donovan/Tom Hanks) commented on his calm … Continue reading

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I won’t be challenging Usain Bolt

I heard an Olympic champion proclaim the other day that her success was proof that anything’s possible if you want it badly enough. That might be true in her case, but in mine it’s just not so. No matter how … Continue reading

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Life in plastic, it’s fantastic!

I reckon the meaning of ataxia (“lacking coordination”) could be applied to our brains. I know I have FA but I suspect my brain doesn’t. Not my functional brain anyway. The phrase “Use it or lose it” comes from the … Continue reading

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Let FAN be your “tap code”

Remember Jim Stockdale? I wrote about him here. He’s the champion of self-taught resilience, the guy who emphasised the importance of balancing a positive expectation of a future outcome with a realistic perspective on the harsh realities of today. Well … Continue reading

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