Category Archives: Terry (FAer)

Trial participation has huge value, to participants and potentially to everyone!

People sometimes think that because they’re invited to participate in a research trial, participation is free. In the sense that free means without cost, it’s not. Trials are enormously complex, time consuming, and expensive. Participants might not be required to … Continue reading

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Five things I learned at the FARA Scientific Symposium, Melbourne, 25th October 2018

It’s important for all FAers to join the registry Things aren’t as simple as we hoped We are all individuals Bigger isn’t always better (but its a good way to start) If you don’t use it, you’ll lose it. I’m … Continue reading

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A Virtuous Cycle

If you need something done, ask a busy person they say. And they’re right. You see, what keeps busy people busy is that they’re getting things done. Add the thing you need done and it joins their list. They’ll get … Continue reading

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D’you like big “…but…”s? Well this one’s huge!

In the many years since diagnosis, how I describe FA has become pretty standard: with resignation. People would enthuse to me back then about how fast progress was being made in medical research and assure me how convinced they were … Continue reading

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It’s only a phone. It lets me be smart!

According to Deloitte, smartphone penetration in Australia is at almost the highest level in the world, at 88% in 2017. They’re so useful I reckon penetration among FAers should be 100%. Here are just three apps I have on my … Continue reading

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A view on meteorology from a physicist

Neils Bohr, a Danish physicist, is reputed to have said “It’s difficult to make predictions, especially about the future”. He was one of the smartest men to ever have lived. I guess he had an enormous respect for weathermen! Well … Continue reading

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What I learned at FARA’s Scientific Symposium

I’m not a scientist, nor a medical researcher. I’m just a normal FAer. I was invited to the Symposium as part of a Patients Panel, a Q&A session for researchers who might work in a lab and might interact only … Continue reading

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Being a God isn’t necessarily a good thing

There’s a character in The Hitch Hiker’s Guide to the Galaxy by Douglas Adams called Rob McKenna. Rob is surly, grumpy and intolerant because it’s raining. In fact, wherever Rob is, it’s always raining. As Douglas Adams explains: “… for, … Continue reading

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I define me

In the Spielberg film Bridge of Spies, Rudolf Abel is arrested, charged, tried and convicted of being a Russian spy. He’s “the most unpopular man in America”. At their first meeting, his attorney (Frank Donovan/Tom Hanks) commented on his calm … Continue reading

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I won’t be challenging Usain Bolt

I heard an Olympic champion proclaim the other day that her success was proof that anything’s possible if you want it badly enough. That might be true in her case, but in mine it’s just not so. No matter how … Continue reading

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